Karna'NEW NORMAL" As karma wouid have it I didn't know what new normal was until it happened to me. Let me repeat myself I have a RARE DIEASE there I said it. No ordinary disease for this girl, it be easy to just give up BUT..........................,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,, as karma would have it I came into this world a Sipes and we Sipes's are a hard headed bunch of folk and when the going gets tough tbe Sipes in us get going. Ie because I' d be lying if I said this jorney has been an easy I'll tell you the sturggle is real, everything is harder the things I use to take for granted. I now view life from a wheelchair ,even the simplest things like tuning over in bed is hard for me. As of late my left foot no longer does as its told, it will freeze refusing to move from its spot no matter what I do it is stuck like an invisaable force field has been put into place to prevent it from moving. The diease has robbed me of so much like my hand writn...